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To explore the potential categories of primary caregiver burden in families of cancer patients and their potential related factors, and to provide scientific basis for more targeted policy interventions.
From February to April 2023, we conducted a questionnaire survey among the primary family caregivers of cancer patients at the Third Affiliated Hospital of Harbin Medical University using convenience sampling. Latent profile analysis was employed to identify potential categories of caregiver burden. The modified BCH method was used to assess the differences in family resilience, individual resilience, and caregiving ability across different burden categories.
A total of 367 participants were included in the study, and their caregiving burden was divided into two categories, named "mild caregiver burden group" and "moderate and severe caregiver burden group". The respondents of "moderate to heavy caregiver burden" were mostly female who were highly educated and had spouse and children. Different potential categories of family caregiver burden profiles showed statistically significant differences in family resilience (χ2=5.333，P=0.021), individual resilience (χ2=31.687，P<0.001), and caregiving ability (χ2=13.391，P<0.001).
There are heterogeneous subgroups of primary caregiver burden in families of cancer patients, and policy makers should implement targeted interventions to reduce the burden of primary caregivers for families with cancer patients, and to improve their personal and family resilience and caring abilities.
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| 科 Family | 属数 Number of genus | 种数 Number of species | 占总种数比例 Percentage of total species (%) | 属 Genus | 种数 Number of species | 占总种数比例 Percentage of total species (%) |
|---|---|---|---|---|---|---|
| 鹅膏菌科Amanitaceae | 2 | 11 | 5.26 | 鹅膏菌属 Amanita | 10 | 4.78 |
| 小菇科 Mycenaceae | 2 | 12 | 5.74 | 丝盖伞属 Inocybe | 5 | 2.39 |
| 多孔菌科 Polyporaceae | 8 | 14 | 6.70 | 蜡蘑属 Laccaria | 5 | 2.39 |
| 红菇科 Russulaceae | 3 | 23 | 11.00 | 小皮伞属 Marasmius | 6 | 2.87 |
| 小菇属 Mycena | 11 | 5.26 | ||||
| 光柄菇属 Pluteus | 5 | 2.39 | ||||
| 红菇属 Russula | 17 | 8.13 | ||||
| 栓菌属 Trametes | 5 | 2.39 |
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