To explore the real experience of the main caregivers of children with chronic kidney disease in the process of diet management,and to provide basis for the formulation of targeted diet management programs.
A phenomenological qualitative research method was adopted for 12 main caregivers of children 3 years old and above with chronic kidney disease admitted to the department of nephrology and immunology of a tertiary grade A hospital in Suzhou city in March 2025 were selected by purposive sampling for semi-structured interviews.The Colaizzi analysis method was used to extract themes.
A total of 3 themes and 6 sub-themes were extracted,including lack of knowledge and information about renal diet(lack of disease-related dietary knowledge,lack of information on renal diet),general and unclear dietary management education and individual differences(dietary management education is too general,individual differences exist in dietary management),and coexistence of insufficient dietary management ability of caregivers and low compliance of children(insufficient dietary management ability of caregivers,low compliance of children).
Medical staff should enhance the primary caregivers' understanding of dietary management for children with chronic kidney disease,improve children's compliance with dietary management,and formulate targeted dietary management plans to enhance the effectiveness of dietary management.
| 科 Family | 属数 Number of genus | 种数 Number of species | 占总种数比例 Percentage of total species (%) | 属 Genus | 种数 Number of species | 占总种数比例 Percentage of total species (%) |
|---|---|---|---|---|---|---|
| 鹅膏菌科Amanitaceae | 2 | 11 | 5.26 | 鹅膏菌属 Amanita | 10 | 4.78 |
| 小菇科 Mycenaceae | 2 | 12 | 5.74 | 丝盖伞属 Inocybe | 5 | 2.39 |
| 多孔菌科 Polyporaceae | 8 | 14 | 6.70 | 蜡蘑属 Laccaria | 5 | 2.39 |
| 红菇科 Russulaceae | 3 | 23 | 11.00 | 小皮伞属 Marasmius | 6 | 2.87 |
| 小菇属 Mycena | 11 | 5.26 | ||||
| 光柄菇属 Pluteus | 5 | 2.39 | ||||
| 红菇属 Russula | 17 | 8.13 | ||||
| 栓菌属 Trametes | 5 | 2.39 |